Links
Families and Advocates Partnership for Education (FAPE)
http://www.fape.org/
Parent Advocacy Coalition
http://www.pacer.org/
Parents Helping Parents Resources, links, technology, more
http://www.php.com/
AAIDD - American Association on Intellectual and Developmental Disabilities
http://www.aamr.org/
Floridians for the Future of the Developmentally Disabled
http://www.ffddnews.com/
Florida Special Needs Advisory Partners (SNAP):
A non-profit organization that gives workshops on Special Needs Trusts and other important documents that every special family needs.
http://www.floridasnap.com/
ARC-USA: State Organizations
http://www.thearc.org/
Broward 2-1-1: Special Need Resources for Broward County
http://211-broward.org/specialneedsindex.htm
The PROMPT Institute
http://www.promptinstitute.com
Sensory Resources Inc.
http://www.sensoryresources.com
Carolina Fragile X Project
Phone: 800-351-4603
Email: deborah_hatton@unc.edu
http://www.fpg.unc.edu
The M.I.N.D. Institute:
http://mindinstitute.ucdmc.ucdavis.edu/
FRAXA Research Foundation
http://www.fraxa.org
Living with Fragile X
http://www.thinkmediaonline.com/fragilex.html
EP Magazine - Exceptional Parent
http://www.eparent.com
The Developmental & Fragile X Resource Centre
http://www.developmentalfx.org/
Special Education Law & Advocacy - Wrightslaw
http://www.wrightslaw.com
Providing Objective Information on Fragile X Syndrome to Parents and Professionals
http://www.fpg.unc.edu/~fxic/
For information about Fragile X in Spanish, please visit:
http://www.nova.es/xfragil
http://www.xfragil.cat
PARENT TRAINING & INFORMATION CENTERS BY STATE
US Department of Education - Office of Special Education
http://www.taalliance.org/centers/
Florida Inclusion Network:
http://www.floridainclusionnetwork.com/
Additional Resources:
The Children's Circle: respite care one Sunday per month at Chabad Center of Kendall/Pinecrest. Children have a morning of fun and learning with activities like music, dance, yoga, arts and crafts, baking, gymnastics and more. For more information please call (305) 234-5654, ext. 12.
ARC Broward:
www.arcbroward.com
Carrie Brazer Center for Autism & Related Disabilities:
www.cbc4autism.com
Children's Health & Education Management:
www.CHEM-learning.com
Children's Psychology Associates:
www.childpsych.org
The Divine Academy:
www.DivineAcademy.com
Florida Diagnostic & Learning Resources System:
www.fdlrs-south.dadeschools.net
Renaissance Learning Center:
www.rlc2000.com
Working the Puzzle:
www.workingthepuzzle.com
Dan Marino Center at Miami Children's Hospital:
http://www.mch.com/page/EN/528/Miami-Childrens-Hospital-Dan-Marino-Center/Therapy.phpx
Miami Children's Hospital:
http://www.mch.com/
UM-NSU CARD serves both children and adults of all levels of intellectual functioning who have autism, pervasive developmental disorders, autistic-like disabilities, dual sensory impairments, or sensory impairments with other disabling conditions. Our primary focus is to provide individualized, direct assistance to these individuals and their families. Services include family support, technical assistance and consultation, parent and professional training programs, and public education activities. CARD services are designed to build on the capacities of state and local resources, not to duplicate or replace them. UM-NSU CARD is funded by the Florida Legislature through the Florida Department of Education, and all services are provided free of charge. http://www.umcard.org/index.htm.
Schools:
Miami-Dade County Public Schools:
Miami-Dade County Schools Division of Early Development:
http://earlychildhood.dadeschools.net/programs.html
Office of Special Education Services for Miami-Dade County Public Schools:
http://ese.dadeschools.net/
Broward County Public Schools:
Preschool Exceptional Student Education:
http://www.broward.k12.fl.us/preschoolese/index.html
Office of Special Education Services for Broward County:
http://www.broward.k12.fl.us/studentsupport/ese/index.htm
Support:
Parent to Parent Miami:
Parent to Parent of Miami, Inc., is a federally funded Community Parent Resource Center serving Miami-Dade and Monroe counties. Our program is a community-wide, tax-exempt, non-profit organization that provides information, educational training and support to families who have children and adults with disabilities and/or special needs. The services are provided in English, Spanish and Creole.
www.ptopmiami.org.
The Children's Trust:
The Trust, the staff and 33-member board are committed to funding programs that offer the highest possible quality services, with the goals of implementing best practices and improving the lives of children and families in our community.
A strong emphasis on active collaboration is critical to improving services and access for children and families in Miami-Dade County. The Trust encourages creative approaches to coordinating, integrating and funding services across and within the areas of health, safety, development and to promote increased parental and community involvement on behalf of all our children and The Trust stresses outcome measurements for all approved grants.
http://www.thechildrenstrust.org/index.php
Florida Yellow Pages for Kids with Disabilities:
http://www.yellowpagesforkids.com/help/fl.htm
Support for Siblings:
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
http://www.siblingsupport.org/
National Fragile X Foundation:
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.
http://www.fragilex.org/
National Fragile X Foundation/South Florida Fragile X Resource Group:
Randy Green (Palm Beach – Broward Counties)
E-Mail: mathmattx123@yahoo.com
Michele Kaplan (Miami – Dade County)
Email: michele@familiesforfragilex.org
Advocate:
Allison Hertog is one of only a handful of professionals in the country who has both a Masters degree in special education and is a lawyer.
www.makingschoolwork.com