Due to the COVID-19 global pandemic, the Families For Fragile X foundation has decided to postpone our annual walk until further notice. As soon as our event is rescheduled we will make an announcement. Thank you for your continued support!

Links

Families and Advocates Partnership for Education (FAPE)
http://www.fape.org/

Parent Advocacy Coalition
http://www.pacer.org/

Parents Helping Parents Resources, links, technology, more
http://www.php.com/

AAIDD - American Association on Intellectual and Developmental Disabilities
http://www.aamr.org/

Floridians for the Future of the Developmentally Disabled
http://www.ffddnews.com/

Florida Special Needs Advisory Partners (SNAP):
A non-profit organization that gives workshops on Special Needs Trusts and other important documents that every special family needs.
http://www.floridasnap.com/

ARC-USA: State Organizations
http://www.thearc.org/

Broward 2-1-1: Special Need Resources for Broward County
http://211-broward.org/specialneedsindex.htm

The PROMPT Institute
http://www.promptinstitute.com

Sensory Resources Inc.
http://www.sensoryresources.com

Carolina Fragile X Project
Phone: 800-351-4603
Email: deborah_hatton@unc.edu
http://www.fpg.unc.edu

The M.I.N.D. Institute:
http://mindinstitute.ucdmc.ucdavis.edu/

FRAXA Research Foundation
http://www.fraxa.org

Living with Fragile X
http://www.thinkmediaonline.com/fragilex.html

EP Magazine - Exceptional Parent
http://www.eparent.com

The Developmental & Fragile X Resource Centre
http://www.developmentalfx.org/

Special Education Law & Advocacy - Wrightslaw
http://www.wrightslaw.com

Providing Objective Information on Fragile X Syndrome to Parents and Professionals
http://www.fpg.unc.edu/~fxic/

For information about Fragile X in Spanish, please visit:
http://www.nova.es/xfragil
http://www.xfragil.cat

PARENT TRAINING & INFORMATION CENTERS BY STATE

US Department of Education - Office of Special Education
http://www.taalliance.org/centers/

Florida Inclusion Network:
http://www.floridainclusionnetwork.com/

Additional Resources:

The Children's Circle: respite care one Sunday per month at Chabad Center of Kendall/Pinecrest. Children have a morning of fun and learning with activities like music, dance, yoga, arts and crafts, baking, gymnastics and more. For more information please call (305) 234-5654, ext. 12.

ARC Broward:
www.arcbroward.com

Carrie Brazer Center for Autism & Related Disabilities:
www.cbc4autism.com

Children's Health & Education Management:
www.CHEM-learning.com

Children's Psychology Associates:
www.childpsych.org

The Divine Academy:
www.DivineAcademy.com

Florida Diagnostic & Learning Resources System:
www.fdlrs-south.dadeschools.net

Renaissance Learning Center:
www.rlc2000.com

Working the Puzzle:
www.workingthepuzzle.com

Dan Marino Center at Miami Children's Hospital:
http://www.mch.com/page/EN/528/Miami-Childrens-Hospital-Dan-Marino-Center/Therapy.phpx

Miami Children's Hospital:
http://www.mch.com/

UM-NSU CARD serves both children and adults of all levels of intellectual functioning who have autism, pervasive developmental disorders, autistic-like disabilities, dual sensory impairments, or sensory impairments with other disabling conditions. Our primary focus is to provide individualized, direct assistance to these individuals and their families. Services include family support, technical assistance and consultation, parent and professional training programs, and public education activities. CARD services are designed to build on the capacities of state and local resources, not to duplicate or replace them. UM-NSU CARD is funded by the Florida Legislature through the Florida Department of Education, and all services are provided free of charge. http://www.umcard.org/index.htm.

Schools:

Miami-Dade County Public Schools:

Miami-Dade County Schools Division of Early Development:
http://earlychildhood.dadeschools.net/programs.html

Office of Special Education Services for Miami-Dade County Public Schools:
http://ese.dadeschools.net/

Broward County Public Schools:

Preschool Exceptional Student Education:
http://www.broward.k12.fl.us/preschoolese/index.html

Office of Special Education Services for Broward County:
http://www.broward.k12.fl.us/studentsupport/ese/index.htm

Support:

Parent to Parent Miami:
Parent to Parent of Miami, Inc., is a federally funded Community Parent Resource Center serving Miami-Dade and Monroe counties. Our program is a community-wide, tax-exempt, non-profit organization that provides information, educational training and support to families who have children and adults with disabilities and/or special needs. The services are provided in English, Spanish and Creole.
www.ptopmiami.org.

The Children's Trust:
The Trust, the staff and 33-member board are committed to funding programs that offer the highest possible quality services, with the goals of implementing best practices and improving the lives of children and families in our community. A strong emphasis on active collaboration is critical to improving services and access for children and families in Miami-Dade County. The Trust encourages creative approaches to coordinating, integrating and funding services across and within the areas of health, safety, development and to promote increased parental and community involvement on behalf of all our children and The Trust stresses outcome measurements for all approved grants.
http://www.thechildrenstrust.org/index.php

Florida Yellow Pages for Kids with Disabilities:
http://www.yellowpagesforkids.com/help/fl.htm

Support for Siblings:
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
http://www.siblingsupport.org/

National Fragile X Foundation:
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.
http://www.fragilex.org/

National Fragile X Foundation/South Florida Fragile X Resource Group:

Randy Green (Palm Beach – Broward Counties)
E-Mail: mathmattx123@yahoo.com

Michele Kaplan (Miami – Dade County)
Email: michele@familiesforfragilex.org

Advocate:
Allison Hertog is one of only a handful of professionals in the country who has both a Masters degree in special education and is a lawyer.
www.makingschoolwork.com